tag:blogger.com,1999:blog-7455556125864384726.post8721561757797438164..comments2023-03-25T03:49:19.161-04:00Comments on A Little Something for Me: Walking a fine LineKristenhttp://www.blogger.com/profile/16225291652604462660noreply@blogger.comBlogger3125tag:blogger.com,1999:blog-7455556125864384726.post-89264162727258700042011-02-26T16:25:26.506-05:002011-02-26T16:25:26.506-05:00Lsuren - I know... I know... I rarely EVER compare...Lsuren - I know... I know... I rarely EVER compare Alexander to anyone else. I was doing ok until I came across that article - which was on that stinking CD. And it made me a crazy person. I couldn't find the CD for the longest time - I think it is because I hid it from myself over the summer when I realized I was driving myself crazy. It was that article that just sent me RIGHT OVER THE EDGE. :( But... in all honesty - I'm laying here with my babe on my chest feeling all sorts of love. I don't really compare - I just don't want to hope too much that one day something is going to happen that I'm always looking for it. I don't want to miss opportunities to cuddle him because I'm forcing him to exercise so he can sit someday. BUT ... I also don't want to cuddle him so much he never has to work his neck muscles... If that makes any sense. I work really hard to find that ballance...... <br />Laurie - I love that you read my bog and ALWAYS comment. It makes me feel so special!Kristenhttps://www.blogger.com/profile/16225291652604462660noreply@blogger.comtag:blogger.com,1999:blog-7455556125864384726.post-14953749968263123262011-02-26T15:32:08.326-05:002011-02-26T15:32:08.326-05:00I love this post. To start off with-- YAY for all ...I love this post. To start off with-- YAY for all of our friends; I sure wish Kaylee was one of those who you described as having a spurt of some sort. In order to hang on to the hope we have for her future, Mark and I have decided to put a g-tube in Kaylee to help ensure that she gets the nutrition necessary to grow and develop to the best of her potential. I cannot help but fear that her lack of development is due to a lack of energy-- directly related to a lack of essential calories required for physical and cognitive growth. I also find that it is hard not to compare our children's development-- even when we know that each child is different (syndrome or not).<br /><br /> When it comes to research, I am much the way you are; in fact, I would love to know what CD you are referring to that tells of deletion sizes of WHS kids we 'know'-- whether personally or not. I have always wondered if deletion size matters in terms of hitting milestones, and while I do think it might make a difference in some unknown way, I can also reassure you that Alexander is making strides and doing things socially that Kaylee still has yet to do, and Kaylee's deletion in in that 16.1-16.3 band...so it is obviously not the end-all, be-all explanation for these things.<br /><br />When it all comes down, there is no way to anticipate what our children will or will not do. All we have is hope~ as long as we have that, we can make it through each day...right?Kisses4Kayleehttps://www.blogger.com/profile/02269588619726459188noreply@blogger.comtag:blogger.com,1999:blog-7455556125864384726.post-35794364339199762062011-02-26T15:03:18.074-05:002011-02-26T15:03:18.074-05:00You research junky! I was the same way. Especial...You research junky! I was the same way. Especially before I saw the evidence of "I AM MY OWN PERSON, MOM, AND STOP TRYING TO COMPARE ME TO OTHER KIDS - WHS OR NOT" in Norrah.<br /><br />I found, from looking at actually kiddos we know, that deletion size doesn't seem to matter much. <br /><br />Thanks for the post. Love the honestly and love the funny little things you throw in there too. I LOVE YOU.Laurenhttps://www.blogger.com/profile/04153660222239080504noreply@blogger.com