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Friday, February 18, 2011

Content

Ahhhh... what a beautiful day. It was in the 60's here. My students are amazing. Really really amazing. I listened to my music on the way to and from school - with the windows down. Then tonight - we had great friends over. My friend Jenn and her incredible children. The big E was just what Ray needed.... a dose of total sports. And Miss K is Addison's new best friend. In fact, she taught Addison how to "scoot" across the floor.  Miss K is also near and dear to our heart because she also has WHS (what Alexander has). Jenn was the first person I talked to who had a child with it. She was the first person I met and Miss K was the first child I met. What they did to heal my heart was more than amazing - but you know what? When I used to think of things - I used to look at Miss K and think, "Please let Alexander hit those goals." - Like eating A TON and scooting and smiling and .... *love, love, love* everything. But tonight - as I'm sitting here with this great family, I'm really not even thinking about WHS. Jenn and I are "gossiping" about work and men and kids and everything under the sun. I'm looking at that beautiful girl and thinking .... she is so beautiful. NOT - she is beautiful even though she has WHS. Do you know what I mean? She's just amazing. She was hilarious.  It was a wonderful day. It was a wonderful night. Jenn is a great friend. Not a great person to know because of this weird thing we share.... just a great friend. I am content.

ps. It would have been maybe a little better if I had taken ONE stinking photo to put with this post :)  But other than that, I am content. :)

2 Comments:

At February 19, 2011 at 8:35 AM , Blogger Kisses4Kaylee said...

Lol-- I was thinking the same thing..."Where's the photo?" (You know how we all are about photos...Lauren has spoiled us, I think). :-)

I have to confess my jealousy over the fact that you and Jenn live so close to one another; when you guys post on fb about meeting for coffee or a get-together, I always think to myself that I wish I lived in PA, too. Although I have not spent as much face-time with Jenn, she has done a lot for me, too, in helping me realize that having a child with WHS does not mean that life as I "planned" has to change. They go to football games, tailgate, amusement parks, etc...all together...and it heals me to think that one day, Mark the kids and I will be able to share in some similar kinds of family memories. I have a hard time imagining having that kind of fun, and then I see pictures of the whole family wearing their matching team shirts sitting in a parking lot tailgating before the game and I think~ "Yeah, THAT's what I want for my life, and I can have it."

I think having friends who understand what unique concerns you are having is extremely important. I feel blessed to have my close circle of fb friends on whom I can count to give me advice, celebrate the little victories, and reassure me when things feel stressful... without them, I do not know how I would have made it this far. That said...I do wish we all lived a little closer to one another.

Love you and cannot wait to see you on the 26th!! xo

 
At February 21, 2011 at 11:45 PM , Blogger Anna said...

I too am really blessed to include in my circle of best friends 3 families who have children with WHS. I love catching up with them and can't go long without seeing them. So glad you had a great time!!

 

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