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The Prayer of a Special Needs Mother

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Monday, March 14, 2011

The Prayer of a Special Needs Mother

Dear Lord,
Will you protect my child when I can no longer protect him?
Will you guide me to find the right person to love him.... when I am no longer here?
Who will not be afraid of him?
Who will give up the life they thought they would have to live the life we now have?
Who will give that up willingly? 
Who will not worry every day that something will happen to Ray and I and they will be "stuck" with Alexander?
How can you guide this person and myself together?
Will you create contentment in our decisions when there are still so many unknowns?
Will you create this person?

They must:
Accept the seizures.
Accept that Alexander may never walk or talk.
Accept that they may care for him into adulthood. 
Accept that they may need to place Alexander in a home for their own sanity - and know that I would approve of this measure.
Accept that family vacations will be different. 
 Accept that medicine, feeding pump, EEG's, therapy, Cardiologists, etc. may become part of their everyday discussion. 
LOVE HIM.
LOVE HIM.
LOVE HIM.
Accept him....

If I could pray one prayer... it would be this prayer.


I just discovered this song by Rascal Flatts and I listened to it while writing this post.  This is the person I need God to place into our lives.....


I Won't Let Go lyrics

It’s like a storm
That cuts a path
It’s breaks your will
It feels like that

You think your lost
But your not lost on your own
Your not alone
I will stand by you
I will help you through
When you’ve done all you can do
If you can’t cope
I will dry your eyes
I will fight your fight
I will hold you tight
And I wont let go

It hurts my heart
To see you cry
I know it’s dark
This part of life
Oh it finds us all
And we’re too small
To stop the rain
Oh but when it rains

I will stand by you
I will help you through
When you’ve done all you can do
And you can’t cope
I will dry your eyes
I will fight your fight
I will hold you tight

And I won't let you fall
Don’t be afraid to fall
I’m right here to catch you
I wont let you down
It wont get you down
Your gonna make it
Yea I know you can make it

Cause I will stand by you
I will help you through
When you’ve done all you can do
And you can’t cope
And I will dry your eyes
I will fight your fight
I will hold you tight
And I won't let go
Oh I’m gonna hold you
And I won't let go
Wont let you go
No I won't

2 Comments:

At March 14, 2011 at 6:15 PM , Blogger Kisses4Kaylee said...

Kristen,
I just love reading your blog posts~ You always seem to read my mind. In fact, I haven't blogged much lately because every time I have a thought or feeling I want to share, you beat me to the punch! lol. Seriously, though, this is one of my greatest fears-- finding someone to love my children should there come a day when I cannot-- and with your permission, I would like to steal it for my own blog (giving credit to you, of course). This is the topic I have been developing a post about in my mind for the past several months, and I just couldn't seem to find the words to say it perfectly...til you did it for me. :-)

 
At March 14, 2011 at 11:36 PM , Blogger Kristy said...

Hi Kristen,

I have seen your picture from the conference on other blogs and facebook. My son Dylan also has WHS and I have a blog too www.ourlittledillpickle.blogspot.com
Alexander is beautiful and amazing. I look forward to following your journey.

:) Kristy

 

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