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Dear Keppra, I think I love you

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Friday, July 29, 2011

Dear Keppra, I think I love you

Please keep the seizures away. That is the most important thing. But – can I just say that I LOVE you? My baby is back. He’s BACK!

His occupational therapist came after we switched off Keppra, so she has never seen him like this… so awe – inspiring.

He’s back to sitting.. almost unassisted again. He’s back in his stander for hours on end again. He’s back to smiling, yapping all over the place, trying to roll, popping his head up, hanging out in the wingbo… Awesomeness.

His OT sat there with her mouth open today. She couldn’t believe all the stuff she was seeing. His physical therapist welcomed him back. She’s got him rolling around again and we are all clapping like crazy.

He’s back to enjoying the flavors of life again. Today he ate pancakes, then strawberry shortcake for lunch, then macaroni and cheese baby food for dinner followed by his own bowl of ice cream… which he polished off. He wasn’t even angry about the temperature! (For any other oral sensitive momma’s out there – I made strawberry shortcake the other day and I’ve been breaking some of it up and mixing up my own fruit mixture to put over it. Alexander loves the texture of it.)

Anyway, we are nearing the end of a very slow wean off Depakote. Depakote has kept the seizures away, but it also made him really drowsy and his appetite was so overblown that he gained weight too fast. He became so lethargic his head began to flop around in the car seat. The doctor asked what direction we wanted to head… and – I just had to give it one more shot. Alexander is bigger now. He can handle a bigger dose. **Keep the seizures away Keppra… because you rock our world.**

A little prayer never hurt anyone. Now is when we really have to watch him. It just has to work.. Just has to. Otherwise we are back to zombie land.

1 Comments:

At July 30, 2011 at 2:17 AM , Non-Stop Mom said...: Saying some extra prayers for you tonight....

:)
Amy

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: Name: Kristen

After the birth of my third child, Alexander, my perspective on life changed. He has Wolf Hirschhorn Syndrome and has taught me many life lessons. When I returned to teaching, I was looking for a way to connect to my students. I started writing letters. 3 years later - and hundreds of letters later - students now stop in to see the letters. With a lot of prompting, I decided to post some. I hope you enjoy..

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